SOFT UK is the leading charity in the United Kingdom dedicated to supporting families affected by Trisomy 13 (Patau’s Syndrome) and Trisomy 18 (Edwards’ Syndrome).
For more than three decades, we have been a trusted source of information, support, and connection for families and professionals alike. From diagnosis and pregnancy through to infancy, childhood, and beyond — we are here to help families navigate their journey with compassion and understanding.
Our work extends beyond family support. We collaborate with the NHS, universities, researchers, and professional bodies to improve awareness, care pathways, and long-term outcomes for families.
Through our network, resources, and lived experience, SOFT UK stands as the authoritative voice on Trisomy 13 and 18 — leading change, fostering understanding, and ensuring that no family faces their journey alone.