A parent's experience of Trisomy 18

Thursday, March 25, 2021 13:50 - 14:25

Trisomy 18 (Edwards’ syndrome) - where babies have an extra copy of chromosome 18 - is the second most common type of trisomy syndrome, and typically comes with a bleak prognosis.

Many parents may choose not to proceed with a pregnancy after a trisomy 18 diagnosis, but an increasing number want to meet their baby. In addition, some babies are not diagnosed until the neonatal period. These parents may therefore require a very special kind of support from midwives and other healthcare professionals.

This presentation will share my experiences as the mum of a child with Trisomy 18, and some of the lessons learned through both our journey and my role as a trustee of SOFT UK supporting other parents with a Trisomy 18 or 13 diagnosis. It is hoped that these insights can both raise awareness of these syndromes and help to identify how midwives can support parents in this situation.

Alison Pearson, Mum of a Trisomy 18 child, SOFT UK